Top 10 Endo Instagram Accounts to Follow

Living with endometriosis can feel isolating — but you’re definitely not alone. Instagram has become a powerful space where endo warriors, educators, and advocates share their stories, offer support, and push for change.

Here are 10 incredible Instagram accounts that provide real talk, valuable resources, and genuine solidarity:


🌼 1. @endoaware

A bright and inclusive space focused on education, daily tips, and powerful advocacy for all gender identities.

🌻 2. @endowhat

From the creators of the documentary Endo What?, this account breaks down myths, promotes research, and fights for better care worldwide.

🌼 3. @drseckin

A leading endometriosis surgeon sharing patient success stories, surgical insights, and updates on excision techniques.

🌻 4. @theendojournal

Personal stories, gentle reminders, and beautiful journaling prompts to help you process life with endo.

🌼 5. @endometriosis.uk

The official account of the UK charity Endometriosis UK — stay updated with awareness campaigns, support groups, and real-life stories.

🌻 6. @hormonehealingrd

Nutrition guidance for hormone health, period pain, and cycle tracking — all backed by science.

🌼 7. @lifeaboveendo

Endo warrior Melissa shares raw, honest experiences, with a focus on mental health and self-advocacy.

🌻 8. @theendoexpert

Facts, stats, and sharp takedowns of common endo misconceptions — a great follow for learning how to advocate for yourself.

🌼 9. @ourendojourney

A supportive global community sharing stories from people living with endo — reminding you that you’re never alone.

🌻 10. @redefiningendometriosis

This account highlights intersectionality, LGBTQ+ inclusion, and challenges outdated norms in endo care.


💛 Why Follow Endo Accounts?

  • Learn how to advocate for better care
  • Discover new coping strategies
  • Feel seen, heard, and validated
  • Connect with a global support network

Got a favourite account not on the list? Let us know — we love discovering new voices.


Disclaimer

All account recommendations are based on community engagement and informational value. Always fact-check advice and consult your healthcare provider before making changes to your treatment.

Paul Broadbent
Paul Broadbent

CEO & Digital Operations Manager, Sapphire MedWeb Solutions

I lead Sapphire MedWeb Solutions as CEO and Digital Operations Manager, with hands-on responsibility for the design, build, and ongoing management of WordPress platforms for healthcare providers and professional service organisations.

My work centres on structured architecture, technical stability, and long-term maintainability, ensuring digital platforms remain secure, appropriate, and straightforward to manage, particularly in environments where clarity and trust are essential.

Sapphire is built on a simple principle: professional web platforms should be calm, dependable, and genuinely useful. My role is to ensure each site is technically sound, responsibly maintained, and aligned with its real-world purpose.

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